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Rat Trap

"We gain strength, and courage, and confidence by each experience in which we really stop to look fear in the face... we must do that which we think we cannot."
-Eleanor Roosevelt Rat Rap xOx Dedicated to my Cystas and My fiBros

Please send your positive healthvibes my way during this time. I came into the emergency room at Stanford hospital tonight feeling like my head and neck were going to explode with every cough and also a numb, tingly, cold arm and hand. After an ultrasound and ct scan the ED doctor just informed me I have a blood clot in my right lung and will be admitted to Stanford Hospital to be treated. The unknown can be scary but I am staying #CFSTRONG AND #FIGHTING!
CT Scan of my Lungs
Ultrasound of my Neck and Arm

Sometimes it's ok if the only thing you did today was #BREATHE!
Never Never Never Give Up
December 17, 2013

Sending my love to you all from the Nurses' Station tonight during a midnight #insomnia walk.
Wishing you all good health and happiness
December 18, 2013

Sink Showers before Surgery ;)

Going into Surgery to take my Port out.
Bye Bye xXx Rawr
Devote yourself to a goal. Go make it happen. Struggle on it. Overcome your fears. Smile.
Don't forget: this is your Dream
Never Give Up on your Dreams
December 19, 2013

Good Morning it's time for X-Rays!
Mario learned about the Giants this morning :)
..haha this guy didn't know he had a Team of Giants coming in for Xray at 6am Turned out he likes the Giants too :)

I can conquer the world with one hand as long as you are holding the other! Cassy Adventures!

My new friend and SMCHS Alumni stopped by to say hi!

Night-time Treatments
December 20, 2013

Staying #CFSTRONG in this FIGHT TO BREATHE For New Lungs and A New Life!

F2B Apparel coming soon!
Another nightly #Insomnia walk in the halls!
December 20, 2013

Sending my love from the Fight2Breathe Offices oXo
December 21, 2013

I am so grateful for all my visitors!

Getting my Mask and Gloves so I can keep Germ Free on my nightly #insomnia walk!

They don't call me the #LEGEND for nothin!
The most beautiful nurse trying to wake up my veins and loading my arms up with hot packs so we could get another IV added on me! I miss my port already!
December 23, 2013

Walking the Halls at Night #Insomnia
December 23, 2013

After multiple days of having low hemoglobin and hematocrit levels my team decided I was in need of a blood transfusion. It is always scary going through new and unknown complications but I am grateful for all of the support I am continuing to receive. I'd also like to say thank you to everyone who has ever donated blood. You are all my #hero! We hope I will be feeling less symptomatic after this!
December 24, 2013

Stay Strong and Keep Fighting for whatever Goals you have in Life!

Thank you to the Cheesecake Factory for supporting Fight2Breathe and donating a delicious cheesecake to the nursing staff :)
December 25, 2013

X-Rays
Christmas Morning
It's Go Time! The Team FINALLY gave me the ok for 5 minutes off the heart and respiratory monitors and blood thinners so I could take a real shower!!!! ...They also gave me this arm cover for all my IVs...
December 26, 2013

Thank you to the Living Breath Foundation for sending my family a delicious warm Christmas Dinner we could all share together!

Love my Brother and Sister
Merry Christmas! I hope everyone had a day full of laughter, joy, and tasty food with their family and friends! Today I feel lucky to have my family by my side spending Christmas in the hospital with me! Sometimes CF can get in the way of traditions but one thing this disease has always taught me is that everything does not have to go as planned to be perfect. As long as I am with the people I love and everyone is happy together it can still feel perfect. Today felt perfect to me! Thank you all for supporting me on this ongoing battle I continue to #FIGHT hard everyday!

Hospital Adventures with my Big Sister Nikki :)
December 27, 2013

Samesies Giants Scarves with My Boo! Thanks Kathy!
December 27, 2013

Hosp Monops with my Best Friend and her family. Thank you for driving up to visit me.
December 27, 2013

Don't be pushed by your problems. Be led by your dreams. It's up to you to make your dreams come true.
December 28, 2013

Neurology this morning injecting 31 Botox shots all over my head in a last effort to finally get rid of my migraines! Let's hope it works!
December 28, 2013

Goodnight from Londers and I xOx
NebThenBed
December 28, 2013

Lucky to be loved and supported by my Family xOx

Good Morning xXx Go Giants!

Checking my Neck and Throat for swelling.

I love my Brother Michael!
December 29, 2013

MRI to check for Blood Clots in my Brain
December 29, 2013

After two full weeks of being hospitalized due to blood clots and blood infections my team stopped my heparin drip and antibiotics discharging me from the hospital on Coumadin an oral blood thinner to continue to thin the clots and hopefully avoid more clots from forming. I will be closely monitored by the anti coagulation team and keep #FIGHTING for new lungs and my goal of transplant.
December 31, 2013